We have been asked how this all happened and to be honest we are still in a daze and trying to understand it ourselves. We live in a fog of fear, confusion and denial and grab onto pieces of information and test results as they come to us. This is an effort to pass on what we know or at least what we think we know.
Three weeks ago Cameron started running a fever and so Nikki took him to see his pediatrician. The sad thing about this disease is that it's symptoms mimic a number of childhood illnesses like viruses, ear infections and the like. Cameron and James had started play school two days a week and we assumed he had caught something that he had not previously been exposed to. He was diagnosed as having a viral throat infection.
The following week, Nikki took him to a checkup at the ENT and Cameron had an ear infection. He was put on antibiotics and we continued to monitor him. His fever continued, and we continued to treat him symptomatically.
On Monday 12th Sep Nikki noticed that Cameron's eye looked slightly swollen, she took him back to see his pediatrician who sent him to the ER at CHOA where he was treated with intraveneous antibiotics and discharged on Wednesday. On Thursday morning his fever returned and he was not able to stand so he want back to his pediatrician and straight back to the ER.
An MRI of his pelvis indicated a severe bone infection so be began a regimen of powerful antibiotics. Further tests by CHOA found a tumor in his adrenal gland which combined with his symptoms led to the diagnosis of Neuroblastoma Cancer.
Since his initial diagnosis, Cameron has had several more CT scans and MRIs. The cancer appears to have spread to the bones in his scull, arms, legs, pelvis, ribs and vertabrae as well as to his bone marrow. Thankfully, it doesn't appear that any of his organs have been effected at this stage.
Cameron has started receiving chemotherapy and will complete a series of 6 chemos, a stem cell transplant and radiation.
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