It's been one of the longest weeks of our lives! Last week, Cameron had a CT scan, an MIBG scan, a urine analysis and a bone marrow aspiration. Today we got the final results...... every one of his scans were clear!! There was no cancer detected on any of the tests! We are over the moon! We still have a long road ahead of us, Cameron will be tested every few months initially and then eventually he will be tested once a year. But for now, we are celebrating this huge victory over this terrible disease. When Cameron was initially diagnosed, his bone marrow was over 90% affected with Neuroblastoma and his cancer had spread all over his body, to get a clear result now is phenomenal.
Cameron continues to do very well. He is still eating like a horse, and he and James are playing so beautifully together - it warms my heart to watch them. He is talking up a storm, adding to his vocabulary almost daily. He has also become fiercely independent, he insists on doing EVERYTHING himself, including wanting to make his own breakfast. He loves to help me around the house, even though a quick 5 minute task can end up taking me half an hour with his help, it's such fun to watch him "cleaning" for mommy. Most of all though, he is being a normal toddler, throwing tantrums, using the word "no" at every opportunity and bossing his brother around. It's exhausting, frustrating and WONDERFUL! I am so grateful that he is well enough to act like a normal 2 year old.
We meet with Cameron's oncologist on Wednesday to discuss his test results. Cameron will then be admitted to hospital on Monday to start his anti-body therapy, the final phase of his treatment plan. He will be the first patient to receive anti-body therapy at Scottish Rite Children's Hospital (although their sister hospital, Egleston Children's Hospital, has been administering the treatment for many years). We are confident that he will be in great hands, even so, the hospital has organised staff from Egleston to spend the week at Scottish Rite to oversee the procedures. We are very fortunate to have such amazing care for Cameron!
I've read this post 3 times over...so happy! Much Love C
ReplyDeleteWoo Hoo! So happy for you all!!! Way to go Cameron! Keep up the fight and call me if you have any questions about immunotherapy!
ReplyDeleteAs always, God is in control....the ULTIMATE PHYSICIAN....so happy for ALL of you and prayers are with you when he enters the hospital for his treatment.
ReplyDeleteThanks for sharing.
Linda Campbell
This is the best news ever!! I am so thankful for you guys. What a huge relief. Enjoy your crazy 2 year olds even if it is exhausting, at least you can go to bed with a very happy heart tonight!! Praying and trusting that his treatment will also go well. Lots of love from all of us!
ReplyDeleteHelette
Thank G-d. As a complete stranger, I know how happy I am feeling... I cannot begin to imagine what you ate feeling.....
ReplyDeleteStay strong and enjoy your beautiful gifts!!!!!
Oxox
Oh Nikki - just read your blog today as I have had a crazy week of meetings. What awesome and glorious news! Thanking God for answered prayers and may the final treatment go really well and you can finally say goodbye to hospitals. Thanks go to God too for the gifts given to those who have cared for Cameron during this long road, and for keeping you and Frank strong. Loved the pic of Cameron on Leigh's blog! Sending love to you all xxx
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