I know, I know, I am a terrible blogger!  I'm sorry that I haven't updated the blog in ages - but we have been far to busy having fun!

Cameron is doing VERY well!  He has gained some weight and is now up to 11kgs (24 pounds).  There are days that he eats more than James, and we have taken him off all of his appetite stimulants, so he is doing this all on his own.  He is the sweetest, happiest little boy!  His new hobby is bossing poor James around.  He calls James "baby" (even though James is twice his size and 3 minutes older), and poor "baby" gets told off regularly!  It's so funny to watch them interact.

Cameron completed his radiation and suffered almost no side effects.  Although he was nervous in the beginning, he soon became a pro and would even hold his own mask for his sedation. 

His antibody and white blood cell counts have been good lately, so we have allowed him to be a two year old.  We have made a few trips to the park and even allowed him to visit Toys-R-Us this weekend.  For a boy that spends most of his time looking at the same hospital fish tank, a trip to Toys-R-Us is like going to Disney Land.

We have really been trying to make the most of our time together as a family, because he is due to go back to hospital on June 25th to begin his Anti-Body Therapy - the final phase of his treatment.
As much as we all love having Cameron at home, James is especially thrilled to have his partner in crime around.  He has relaxed a lot and is back to being his old self again, loving and gentle with far fewer tantrums.  I hate taking Cameron away from him again when he has just settled down.  The good news is that Cameron will only be going into hospital for a week at a time - the bad news is that it's every month for the rest of this year. 

This week, Cameron will be having scans to check if he has any new or residual cancer left,  he will also have a bone marrow aspiration to check that his bone marrow is clear of cancer.  We need clear test results to start his antibody therapy.  Antibody therapy is one of the most important parts of Cameron's treatment, it will improve his prognosis by about 15%, which is substantial.  It's a very painful, unpleasant process, that can have severe side effects - but it is a vital part of this treatment.
Naturally, this is a very stressful week for us, as much as I want to be positive and confident that he is getting better - there is that tiny voice in my head that says "what if he isn't".  It's terrible - I try to banish that voice any time it pops up, but it's a reality -  this terrible disease can come back at any time, not matter how much chemo we throw at it!  In the mean time, we are keeping our fingers and toes crossed and hoping for perfect and clear results this week!

I promise to blog as soon as we have all the results and we know what the next step is.