Friday, February 17, 2012

Day -6

And so the countdown to Cameron's transplant has begun. 

He was admitted yesterday to Egleston Children's Hospital and began his high dose chemo.  So far he has tolerated the chemo well and hasn't started throwing up yet.  The type of chemo that he is getting right now, requires him to be bathed every 6 hours, as the chemo comes out of his pores and can cause serious burns on his skin.  The bathing is not going so well!  Cameron is HATING it!  He has only been sponge bathed since he was diagnosed, as he has a central venous line (a soft tube inserted into his chest into a vein that leads to his heart) and it cant get wet.  So after almost 6 months of not being allowed to get wet at all, he is not so sure about this bathing thing - especially when he gets woken up at midnight, stripped down and put in the bath tub.  To make matters worse, this morning when we woke him up for the 6am bath, we discovered that there was no hot water.  After waiting for an hour for the engineering department to try to sort it out, we eventually decided that we would have to use hot water from the coffee machine to try to heat Cameron's bath water up.  We managed to get it to just above freezing, but he still had to have his bath.  Nightmare!  The water problem seems to be resolved now, so hopefully the next bath will be slightly better for him.

I had planned to go home and spend the weekend with James, but the poor little guy came down with a bad stomach bug and was sent home from school early because he started throwing up.  The throwing up continued through out last night, but seems to have settled a bit now.  Because of the risk of germs, I am not going to be able to go home now, until he is better - so the first time I will be able to get home is next Saturday (its the earliest that I can switch with Frank).  I hate being away from my kids when they aren't feeling well, but thank goodness my mom is here, so at least I know that James is in VERY capable and loving hands.

Other than that, things are pretty quiet here.  Cameron is spending a lot of time on the iPad and watching TV and of course, entertaining me with his antics and constant jabbering.

I will try to keep the blog updated as much as possible and will post some photos soon.

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