What we've been up to

Time sure does fly when you are having fun - and oh, what a lot of fun we have been having lately!

Cameron was discharged from hospital about a week ago and he has been doing very well since he came home.  He always does better in his own environment and this time is no exception.  He is eating and drinking well and trying his best to keep up with James.  He still isn't really allowed to leave the house and has to wear a mask if he does go anywhere - even while he is in the car, but that doesn't seem to bother him too much.  He is off all of  his medications and is as happy as ever.  He has even learnt some new words and can identify several colors.  We are so proud of him!!

I know that soon he will be feeling awful again, so I am really making the most of the time that he feels good and can be active and happy.  Our date to return to hospital for his second transplant hasn't been finalized yet, but should happen sometime during the week of the 9th of April.  In the mean time, he will go back to hospital next week to have ear tubes (Grommets) put in to try and resolve some of the fluid that he has in his ears most of the time, and he will have to have a GFR (Kidney Function) test done.  Both of these are out-patient procedures, so we should be home after a few hours.

James is doing a bit better since Cameron and I came home.  He clearly misses Cameron so much and a few times I have found them fast asleep holding hands and James will often go up to Cameron and stroke his head.  It's too cute to watch them together.  Of course they still squabble over toys and who gets mom and dad's attention - but they are two after all.

I have been trying to spend some one on one time with James and we have been having LOTS of fun together!  We spent the entire morning together last week at the mall, riding the little train and the carousel, followed by lunch at Chick-fil-A.  We had an absolute blast!  We even stopped at Build A Bear, where we made a special bear for Cameron.  We have also been to the park twice and an indoor play area.  It's been a privilege to spend such quality time with this little man, I missed him so much and it made my heart sore to see that cheeky grin of his again and hear him howl with laughter every time the train conductor blew his whistle.  I honestly can't wait until we can do these things as a family again. 

Sadly this week, we had to say goodbye to my mom as she had to return to Dubai.  She was an enormous help to all of us and we can't thank her enough for putting her life on hold for 3 months to come and take care of James and the household.  I miss her already!

Frank's mom has come over to lend a hand for the next month which we are so grateful for.  As I have said before, we are so blessed to have such loving families who are prepared to drop everything and travel all the way here to help us. 

Let's hope that the next two weeks are medically uneventful and we continue to enjoy our time at home together.  Here are a few photos of the fun that James and I have been having...